A History of Autism: Conversations with the PioneersISBN: 978-1-4051-8654-4
Hardcover
400 pages
October 2010, Wiley-Blackwell
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"This is a comprehensive history, charting thinking, practice and theories from the late 1930s to the present day . . . Recommended - a much-needed addition to the autism library." (Communication Magazine, 1 April 2011)
"Recommended. Graduate students, researchers, professionals." (Choice , 1 April 2011)
"Feinstein offers one of the first truly comprehensive overviews of the history of autism research...culminating with a discussion of the projected future of autism research. He interviewed dozens of researchers and prominent autistic people in several countries, in addition to consulting numerous primary sources to compile this authoritative text. Feinstein traces the condition from before it was known as autism through the present day, and in so doing, methodically dissects both the parental blame hysteria that gripped the 1980s and the explosion of autism awareness and controversy in the twenty-first century." (Asperger's Association of New England Journal, Fall/Winter 2010)"This is a much needed book on the history of autism. What sets this book apart from the others is the description of the hypotheses about the disorder back when Dr. Kanner and Dr. Asperger were first writing about their unique discoveries. It provides readers with a much needed understanding of the disorder from the past as well as the present." (Doody's, September 2010)
"This book is more than a collection of facts; it's also a detailed account of often-fierce controversy and professional rivalry....... Feinstein's book is a fascinating and indispensable record of the journey so far." (Special Children, 2010)
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"No one has attempted to write the history of autism so comprehensively before. Adam Feinstein's highly readable but remarkably thorough book contains a treasure-trove of conversations with the scientists, clinicians, lobbyists, and parents who have shaped the development of autism in both research and policy. The timing of this book is opportune, as the pioneer generation become 'emeritus'. History-telling is never wholly objective, but Feinstein (the science-writer, parent, and international conference organizer) is better placed than almost anyone to document the extraordinary changes that have happened to the autism community world-wide since the 1940s onwards. This book is an important contribution to the history of medicine and a unique resource for future generations who will build on their predecessors."
-Professor Simon Baron-Cohen, Director, Autism Research Centre, Cambridge University
"The material in A History of Autism is selected and
worded with such enthusiasm, such personal engagement, that it is
contagious. I couldn't stop reading. This book is a monument; a
milestone that we all owe to autism's history."
-Theo Peeters, Centre for Training in Autism, Belgium
"From the many years before Kanner's 1943 description when the
condition was known by other names, through all that has happened
to the present time, along with; a glimpse of the future, Feinstein
explores the evolutionary journey of autism in an enlightened,
educational, and entertaining fashion. Nowhere will you find a more
comprehensive, carefully documented and eminently readable account
of the history of autism than this book."
-Darold A. Treffert, Clinical Professor of Psychiatry,
University of Wisconsin Medical School, USA
"Adam Feinstein provides an essential historical context for
autism; one of the most contentious childhood diagnoses today. This
is a grounding book for those ready to look beyond pet theories,
'magic bullets' and 'treatment of the day'. This book will navigate
you beyond the idea of any 'one autism' and leave you with the
clarity, hope and opportunity for new directions inherent in that
realization."
-Donna Williams, Dip Ed, BA Hons, author and autism
consultant
"Of interest to researchers, clinicians and parents, this volume
provides a detailed perspective on the history of autism and
related disorders. Writing from the perspective of a parent, Adam
Feinstein brings the people and concepts vividly to life in this
insightful and comprehensive book."
-Fred R. Volkmar, Irving B. Harris Professor and Director,
Child Study Center Yale University, USA
"The field of autism has been in need of a solid historical
account of the many changes since Kanner first coined the term
autism in 1943, and Feinstein's book finally fills that gap. His
novel approach of telling the story of autism through interviews
with the pioneers, their associates, and their family members is
creative and fascinating. What wonderful stories these people tell,
how well the author passes the stories on, and what a terrific way
to relate the history of the field.
Feinstein's deep understanding of the field leads to excellent
questions and penetrating discussions. This wonderful combination
will be irresistible to anyone interested in how the field got to
where it is now and where it might be going."
-Gary B. Mesibov, Professor, University of North Carolina
School of Medicine, USA
"This book outlines, from an unusual point of view, the history
of the development of the concept of the spectrum of autistic
conditions. The author's account is brought to life in fascinating
detail by his interviews with leading professionals (or their
children, who survive them), parents, and adults with autistic
conditions. He reveals the controversies between professionals and
the problems that still exist for families in different countries,
as well as the progress that has been made. A book to be highly
recommended to anyone with an interest in autism."
-Lorna Wing, Honorary Consultant to the National Autistic
Society, UK
"Adam Feinstein's book is a valuable contribution to the autism
literature. No other author has sought out the important scientific
contributors to autism research; it is fascinating to read their
current views, as well as a summary of their original
contributions."
-Susan E. Folstein, Professor of Psychiatry, John P. Hussman
Institute of Human Genomics, USA
"The story of autism only began remarkably recently. In this
unique book you can listen to the voices of the opinion makers and
learn what they thought about autism in times past and present.
Pioneers who pushed the boundaries of knowledge since autism was
first identified talk freely about their ideas and
experiences."
-Uta Frith, University College London
"This is a remarkable, beautifully written work, which is
destined to become a classic for the field. Feinstein takes a
highly original approach to charting progress in our understanding
of this enigmatic developmental disorder through interviews with
researchers and community pioneers from around the world. This
unique book is a must-read for scholars, students, parents and
professionals; it provides a balanced and historical perspective on
what we know and what we don't yet know about autism.
It leaves the reader with a strong sense of accomplishment about
how far we have come through the partnership of families and
researchers. I came away with genuine optimism that our ability to
transform the lives of millions of children and adults with autism
from around the world will be achieved in the near future, with the
help of visionaries like Adam Feinstein!"
-Helen Tager-Flusberg, Boston University, US