Helping Children and Adolescents with Chronic and Serious Medical Conditions: A Strengths-Based Approach

Foreword, Barbara Sourkes, PhD xi

Preface xv

Acknowledgments xix

Part I Overview and Introduction: Theoretical Framework for Collaborative Practice 1

Chapter 1 When a Young Person’s Health Becomes Problematic 3
Nancy Boyd Webb and Rose A. Bartone

Chapter 2 The Emotional Impact of a Young Person’s Illness on the Family 21
Cindy Dell Clark

Chapter 3 The Economic, Social, and Cultural Context of Health Care 35
Virginia Rondero Hernandez

Part II Helping Approaches of Practitioners in Different Settings 57

Chapter 4 A Behavioral Pediatrician’s Perspective on Helping Children Recover from Traumatic Medical Experiences 59
Joan Lovett

Chapter 5 Child Life Practice in Hospitals 73
Deborah Vilas

Chapter 6 Working with Families of Medically Challenged Youth 89
Jennifer Baggerly

Chapter 7 School-Based Interventions for Children and Youth with Medical Conditions 105
Suzanne C. Griffith and Rosemary Doyle

Chapter 8 School Social Work Interventions for Medically Compromised Youth and Families 121
Linda Openshaw

Chapter 9 Strengths-Based Group Work with Children 137
Ariel Allena Botta

Chapter 10 Play and Expressive Therapies with Medically Challenged Children and Adolescents 155
Nancy Boyd Webb

Chapter 11 Meeting the Spiritual Needs of Children with Chronic and Life-Threatening Illness 171
Paul Thayer

Part III Challenges and Issues Associated with Chronic, Ongoing, or Recurring Physical Conditions and Disabilities 187

Chapter 12 Medical Conditions Present at Birth 189
Patrick Shannon

Chapter 13 Medical Conditions That Appear During Early Childhood 205
Roxia B. Bullock

Chapter 14 Other Conditions That May Occur in Childhood or Develop in Adolescence 225
M. Carlean Gilbert

Part IV Acute Health Crises 241

Chapter 15 Outpatient Counseling for Children and Youth with Life-Threatening Conditions 243
Douglas Davies and Nancy Boyd Webb

Chapter 16 Hospital Treatment of Children and Youth with Life-Threatening Conditions 269
Elaine C. Meyer

Chapter 17 Helping in the Emergency Room after Accidents and Traumatic Injury 285
Leslie H. Wind

Part V Challenges and Guidelines for Helping 303

Chapter 18 The Challenge of Maintaining Hope and Fostering Resiliency: Implications for Youth, Families, and Practitioners 305
Nancy Boyd Webb

Appendix

Child-, Youth-, and Family-Health-Related Professional Organizations 317

Training Programs and Certificates Related to Helping Medically Challenged Youth and Families 321

Child-, Youth-, and Family-Health-Related Professional Journals 324

Additional Health-Related Resources for Youth and Families 330

About the Editor 335

About the Contributors 337

Author Index 341

Subject Index 351